Working in the area of medical research I hear a lot about cancer. From the development of algorithms that can predict who is most at risk of developing the disease to the best ways to support patients through surgery, the big C is still top of the research agenda for many academics. Therefore, I’m slightly embarrassed to admit that when I sidestepped away from neuroscience into the broader field of health research I wasn’t entirely prepared for the deluge of cancer research about to fall on my lap.
But this shouldn’t have come as a surprise, especially since it is currently suggested that one in 2 people will, at some point in their lives, develop cancer and that deaths from cancer are higher in Greater Manchester than the rest of the UK. I’m sure I’m not alone in finding these facts excessively scary and, if I’m honest, I don’t know if I’ll ever be comfortable with the idea that one in 2 of us will suffer from cancer at some point in our lives (flip a coin, heads you win tails you lose).
However, it’s exactly these feelings of fear and disassociation I want to explore.
With the sword of Damocles resting maliciously above our heads and knowing that our best weapon against the big C is early diagnosis, is it time for cancer to be dragged out of the shadows and for us all to have a good look?
Earlier this year I took my mum to a talk called ‘Identity and Illness’ which was billed as an exploration of the way we build our identities up around our illnesses and what role diagnosis plays in this process. For some reason I built this up in my mind as being about mental illness, a topic I’m very interested in, and was shocked when we turned up and found that it was actually an exploration of how a cancer diagnosis influences identity. It had been a long day at work, I was tired and cancer was not something I wanted to think about. However, I’m glad I avoided the temptation to stick my fingers in my ears and hum loudly because the discussion soon took a very interesting turn. The speakers began to question why as a society we bury our heads in the sand when it comes to cancer, softly repeating the mantra it won’t be me, when the upsetting truth is that it’s pretty likely to be you and that your best chance of survival is vigilance and acceptance. Why are we so reluctant to confront illness as part of our everyday lives and would that feared diagnosis be easier to stomach if information, frank discussion and disease role models were a more common part of our daily lives?
People just don’t want to talk about serious illness and it’s rarely addressed in the media. Who else was shocked last year by what seemed to be the sudden death of David Bowie shortly after releasing his poignant music video Lazarus (“look up here I’m in heaven, I’ve got scars that can’t be seen”). In fact, studies suggest that it’s not rare for people to try to hide serious illness, with a quarter of people actively hiding their diagnosis from colleagues and, if possible, even from their family and friends.
But, however far under the rug we try to sweep illness it won’t go away. No family is immune and it can affect people of any age, wealth, profession and education. So, would we be better off opening the box on cancer and other serious illnesses and trying to integrate them back into society. Should illness be the norm rather than just our dirty little secret and would this mindset improve diagnosis, survival rates and the quality of life for sufferers?
Perhaps encouraging more transparency and better dialogues would even go some way to tackling some of the damaging and pervasive myths surrounding cancer. It’s much easier to build up false narratives around something which is hard to see than around things which are common parts of our everyday lives.
I do recognise that this is a difficult topic but it’s one that needs to be addressed. Rather than fearing illness, we should be prepared to increase our awareness, using all the knowledge at our disposal to recognise the earliest symptoms and be prepared to fight as soon as it raises its ugly head. And yes, like many of you, I know that no matter how loud my logical brain shouts that illness and cancer are just a part of life and that knowledge is our best weapon, there will always be a part of me that wants to hide away and ignore it. But, cancer research is moving forward in leaps and bounds and survival rates associated with early diagnosis have never been higher. So, it’s never been more important to face this monster head on – shout it’s name from the rooftops and assert that we will beat it.
Post by: Sarah Fox